Heidi Carmen Howard
Howard, Heidi Carmen
VIAF ID: 52152501125810681494 (Personal)
Permalink: http://viaf.org/viaf/52152501125810681494
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Works
Title | Sources |
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Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms | |
Anxiety delivered direct-to-consumer: are we asking the right questions about the impacts of DTC genetic testing? | |
Attitudes of publics who are unwilling to donate DNA data for research. | |
The challenges of the expanded availability of genomic information: an agenda-setting paper | |
The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe | |
The clinical application of gene editing: ethical and social issues | |
Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing | |
Direct-to-consumer genome scanning services. Also for children? | |
DTC Genetic Services: A Look Across the Pond | |
Ethical issues raised by whole genome sequencing | |
Ethical issues related to research on genome editing in human embryos | |
European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death | |
Genetic testing: anonymity of sperm donors under threat | |
Germline Genome Editing Research: What Are Gamete Donors (Not) Informed About in Consent Forms? | |
Health-related direct-to-consumer genetic testing: a review of companies' policies with regard to genetic testing in minors | |
How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF). | |
Include egg donors in CRISPR gene-editing debate | |
Is There a Right Time to Know? The Right Not to Know and Genetic Testing in Children. | |
'It's much more grey than black and white': clinical geneticists' views on the oversight of consumer genomics in Europe | |
Letter to the Editor | |
Moving towards a cure in genetics: what is needed to bring somatic gene therapy to the clinic? | |
Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening. Summary and recommendations | |
One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans | |
Personal Genome Testing: Do You Know What You Are Buying? | |
Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness | |
Preconceptional genetic carrier testing and the commercial offer directly-to-consumers | |
"I prefer a child with …": designer babies, another controversial patent in the arena of direct-to-consumer genomics. | |
Readability of informed consent forms for whole-exome and whole-genome sequencing. | |
Regulating the advertising of genetic tests in Europe: a balancing act. | |
Reply to Bombard and Mighton | |
A response to the forensic genetics policy initiative’s report “Establishing Best Practice for Forensic DNA Databases” | |
Responsible implementation of expanded carrier screening | |
Responsible innovation in human germline gene editing. Background document to the recommendations of ESHG and ESHRE | |
A review of the barriers to sharing in biobanking | |
Science and Regulation. Changes on the horizon for consumer genomics in the EU | |
[Severe neuropathy with agenesis of the corpus callosum] | |
To ban or not to ban?: Clinical geneticists' views on the regulation of direct-to-consumer genetic testing. | |
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia | |
Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories | |
Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market | |
Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics | |
Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes | |
Willingness to donate genomic and other medical data: results from Germany | |
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods | |
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